Support

The Group is a parent support group founded in 1999 by the parents of affected children. There is currently no formal membership arrangements. The following are offered:

•Support by telephone, letter and e-mail
•Information on the condition
•Linking families

We are currently linked to families throughout the UK, Republic of Ireland, Denmark, New Zealand and the rest of the world. It is hoped that the presence of a recently established website will increase awareness within the Medical Profession and provide information for families who have children with this rare condition.

You can contact Bob & Lynn Mussard (the site co-ordinators) at:

Vein of Galen Parents Support Group
28 Southgate Drive
Wincanton
Somerset
BA9 9ET

Or contact the support group via Contact  a family:

Vein of Galen Parents Support Group
c/o Contact A Family
209-211 City Road
London
EC1V 1JN

Telephone +44 (0) 20 7608 8700
Fax +44 (0) 20 7608 8701

Alternatively use the contact form to email us!

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