Family Story update log added

Just a note to let everyone know that under the family stories heading on the main page, there is now a link to the family story update log. The family stories are one of the most important part of this whole website in my eyes. They are what make it unique and so many people get comfort from reading about the stories of others who have gone through similar experiences as their own. From now on, any new stories or updates / changes to existing ones will be logged on this new page so that visitors to the site and those families who have submitted stories, can quickly see when their changes have been published to the main site.

I hope this is useful for everybody!

Graham (site admin).

Posted in News | 1 Comment

Uma Maheswari

Uma’s Story Born October 13th, 2010 Myself Salini and my husband Ajay Kumar got married in Aug 2006.I became pregnant for the 1st time in April 2007. But it was a vascicular mole. 2nd pregnancy was in Dec 2007. That … Continue reading


Alfie Dale

This gallery contains 6 photos.

Alfies Story I found out that I was expecting identical twins at my 12 week scan and with no history of twins in our family this came as a very huge shock. Due to the complications that twin pregnancies can … Continue reading

| Tagged , , , | 1 Comment

Did you know we have a forum? ….

Did you know we have a discussion forum? If you look under the support option on our menu at the top of the page, you will find the forum page.

Or you can just go here to jump direct to the forum itself.

Sign up is free but you will need a valid email address in order to complete the registration process and to fully identify you as the person that signed up. Once you have registered, you will be able to chat to other people about their experiences with Vein of Galen malformation.

We hope that the readers of our site find the forum a useful resource. If anyone has any suggestions as to anything else we could do to improve the site, or any information you require that you cannot find here, please contact us and we will try our best to help.

Aside | Posted on by | 3 Comments

Karl Chuter

This gallery contains 1 photo.

Karls Story In 1975 I had meningitis, the diagnosis was made at the Cambridge military hospital in Aldershot. At the same time the doctor in question heard a noise. Thinking it was my heart I was sent to the Brompton, … Continue reading

Gallery | Tagged , , | 3 Comments

Kai Da Silva

This gallery contains 5 photos.

Kai’s Story Born July 18th, 2005 This story is about our baby boy, Kai Da Silva. We were living the perfect life, I had an amazing pregnancy – and our son seemed well. When Kai started nursery at 6 months … Continue reading

Gallery | 1 Comment

Requesting family story updates….

As we have moved to a new look for our website, we thought now would be a good time to update some of the family stories that make it what it is.

So for any of you who read the site regularly, or for those who just come by to browse but may have a story of their own to tell, we would love to hear from you and let you share it. If your story already features on our site, perhaps you would like to share any updates with us?

Please visit the family stories page or see the post at the top of the home page to see how to go about sending your stories in.

Posted in News | Tagged , | Leave a comment

Elliot Braff

Eliott’s Story Born April 10th, 1999 Eliott was born on the 10th April 1999 .It almost happened in the car as everything went very quickly.It was in the 35th week of Alexandra’s pregnancy. We reached the hospital in Jerusalem not … Continue reading

Gallery | Tagged , | Leave a comment

Kaitlynn (katie) Stone

This gallery contains 2 photos.

Katie’s Story Born April 24th, 2006 Our daughter Katie rushed in to the world six weeks early on September 17, 2004. She weighed over 6 pounds and aside from a heart murmur detected in the hospital, she appeared perfectly healthy. … Continue reading

| Tagged , , , , | 1 Comment

Ella Grace Honeyman

This gallery contains 8 photos.

Ella’s Story Born June 7th, 2007 Our first daughter (Niamh) was born by emergency caesarean section weighing in at 7lbs13oz, healthy and with no problems. Ella-Grace was born at 39 weeks, also by c-section, weighing 7lb2oz. Again all was deemed … Continue reading

| Tagged , , , , , | Leave a comment