Alfie Dale

This gallery contains 6 photos.

Alfies Story I found out that I was expecting identical twins at my 12 week scan and with no history of twins in our family this came as a very huge shock. Due to the complications that twin pregnancies can … Continue reading

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Did you know we have a forum? ….

Did you know we have a discussion forum? If you look under the support option on our menu at the top of the page, you will find the forum page.

Or you can just go here to jump direct to the forum itself.

Sign up is free but you will need a valid email address in order to complete the registration process and to fully identify you as the person that signed up. Once you have registered, you will be able to chat to other people about their experiences with Vein of Galen malformation.

We hope that the readers of our site find the forum a useful resource. If anyone has any suggestions as to anything else we could do to improve the site, or any information you require that you cannot find here, please contact us and we will try our best to help.

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Karl Chuter

This gallery contains 1 photo.

Karls Story In 1975 I had meningitis, the diagnosis was made at the Cambridge military hospital in Aldershot. At the same time the doctor in question heard a noise. Thinking it was my heart I was sent to the Brompton, … Continue reading

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Kai Da Silva

This gallery contains 5 photos.

Kai’s Story Born July 18th, 2005 This story is about our baby boy, Kai Da Silva. We were living the perfect life, I had an amazing pregnancy – and our son seemed well. When Kai started nursery at 6 months … Continue reading

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Requesting family story updates….

As we have moved to a new look for our website, we thought now would be a good time to update some of the family stories that make it what it is.

So for any of you who read the site regularly, or for those who just come by to browse but may have a story of their own to tell, we would love to hear from you and let you share it. If your story already features on our site, perhaps you would like to share any updates with us?

Please visit the family stories page or see the post at the top of the home page to see how to go about sending your stories in.

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Elliot Braff

Eliott’s Story Born April 10th, 1999 Eliott was born on the 10th April 1999 .It almost happened in the car as everything went very quickly.It was in the 35th week of Alexandra’s pregnancy. We reached the hospital in Jerusalem not … Continue reading

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Kaitlynn (katie) Stone

This gallery contains 2 photos.

Katie’s Story Born April 24th, 2006 Our daughter Katie rushed in to the world six weeks early on September 17, 2004. She weighed over 6 pounds and aside from a heart murmur detected in the hospital, she appeared perfectly healthy. … Continue reading

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Ella Grace Honeyman

This gallery contains 8 photos.

Ella’s Story Born June 7th, 2007 Our first daughter (Niamh) was born by emergency caesarean section weighing in at 7lbs13oz, healthy and with no problems. Ella-Grace was born at 39 weeks, also by c-section, weighing 7lb2oz. Again all was deemed … Continue reading

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Danny Gilbert

This gallery contains 3 photos.

Danny’s Story Born October 8th, 2005 My son Danny was a difficult pregnancy. Everything that could go wrong went wrong. I had gestational diabetes and preeclampsia and was sick all the time. I finally went into labor on October 8, … Continue reading

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Kayla Marie Rahe

This gallery contains 6 photos.

Kayla’s Story Born April 14th, 2008 My family spent many weeks reading through the stories on this website when we discovered during a 30 week ultrasound, that our daughter had the rare malformation, the Vein of Galen. The Dr’s and … Continue reading

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