Author Archives: vogadmin

About vogadmin

Vein of Galen UK is a website dedicated to families and sufferers of Vein of Galen malformation all over the world. We provide information and support for families affected by this condition.

2017 updates

This site is not maintained as regularly as it once was, mainly due to the popularity of Facebook and the ease with which people can get in touch with other families affected by VOGM on there. (Please see the links … Continue reading

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Ashley Keets Story

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Born 9th June 2015  Ashley didn’t want to leave my tummy. She was in there for 42 whole weeks when I started getting what felt like contractions. I went to the clinic (we do not have medical aid) and they … Continue reading

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Ella-May Lummis

Hi my name is Michelle Lummis. I have 4 beautiful girls, Ebony-Louise (15) Lucy-Mai (13) Annabelle (17mth) and Ella-May would be 12weeks. It all started when I went for a routine growth scan. we were told Ella-May had an abnormal … Continue reading

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Happy New Year!

Happy New Year to all our readers! Thank you for your ongoing support and for visiting us and coming back regularly. This site had 21000 views in 2012 from all over the world. We haven’t put up much new content … Continue reading

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Update posted to Zachery Liam Vandekuyt’s Story

Zacherys parents kindly posted us an update recently. Please take the time to visit Zacherys page. We wish Zacherys parents Krista and Rob all the happiness in the world and our sincerest congratulations on the arrival of their baby girl … Continue reading

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Kyle Billy Hopper

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Kyle’s Story Born October 10th, 2010 Our names are Natalie and David we have four children Ryan, Chloe, T.J. and Kyle. We live in Seaham Co.Durham. When I was 33 weeks pregnant with our fourth child, during a normal growth … Continue reading

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Vein Of Galen Study Day – 14th December 2011

Lynn and Bob Mussard the owners and driving force behind this site were invited to attend a presentation by world reknowned VOGM expert Dr Karel Ter Brugge at the yearly meeting of the UK Centres for treatment of VOGM. Dr … Continue reading

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Happy new year!

A very happy new year to all our website users from all of the team here at Vein of Galen UK. We hope you have all had a good christmas and wish you all the very best for 2012. A … Continue reading

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David Krause

David’s Story Born October 31st, 2010 I was pregnant for the first time and had my third ultra-sound scan on August 27, 2010 (29th week), when my gynaecologist told me that there would be an “abnormality in my child’s brain”. … Continue reading

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Support forum poll. Please vote if you use this site.

Visitors to this site who used the old site will know that there was a popular message board on there. When we moved to this site, we created a new message board but this was not used anywhere near as … Continue reading

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