Did you know we have a forum? ….

Did you know we have a discussion forum? If you look under the support option on our menu at the top of the page, you will find the forum page.

Or you can just go here to jump direct to the forum itself.

Sign up is free but you will need a valid email address in order to complete the registration process and to fully identify you as the person that signed up. Once you have registered, you will be able to chat to other people about their experiences with Vein of Galen malformation.

We hope that the readers of our site find the forum a useful resource. If anyone has any suggestions as to anything else we could do to improve the site, or any information you require that you cannot find here, please contact us and we will try our best to help.

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About vogadmin

Vein of Galen UK is a website dedicated to families and sufferers of Vein of Galen malformation all over the world. We provide information and support for families affected by this condition.
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3 Responses to Did you know we have a forum? ….

  1. There seems to be very little activity on the forum currently, certainly in comparison to the forum on the old site. Does anyone have any feedback on the new forum at all? Your views would be appreciated, especially opinions on what we could change to make the forum a useful meeting platform for family/ carers of VGM sufferers to talk to each other.

    You can contact us via the support email or leave a comment here, if you do have any thoughts.

    thanks,

    Graham

  2. Kate Da Silva says:

    I believe there should be more activity on here – I am going to make a concerted effort to be more hands on for people that need help. If anyone out there ever needs to talk please feel free to email me or talk on here – katedasilva11@gmail.com
    Thanks Kate Da Silva (Kai’s mum)

  3. vogadmin says:

    Hi Kate,

    Thanks for your support. As you can probably see, unfortunately the forum was removed by freeforums.org for inactivity, which is a shame. The traffic on this site would suggest that there are many people who seek out information and advice on Vein of Galen malformation with an average of 73 views a day to this site and some days as many as 200.

    I would be more than happy to resurrect the forum if the demand was there from the users of this site. In fact I may start a poll………….

    thanks,

    Graham (site admin and Paige Duncans step dad)

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