Born August 13th, 2004
My daughter Jessica was diagnosed around 9 months of age with her VGM. She never had hyrdocephalus, but her head circumference kept increasing. When she went for her first angiogram, they decided not to begin treatments, because it looked as if her body might have adapted to the malformation. Then December of 2006, she was diagnosed with CHF, and put on medication to help with that. Now April 9, 2007 she had her first treatment angiogram with embolization to start the process. They used that “glue like substance”. She will need many more treatments they said. They accidentally damaged the vessel in her right leg during the treatment. WE are scheduled May 7, 2007 for another treatment, and then again June 4, 2007 for another one. They want to continue every 4 weeks, until they can slow down the blood flow to her heart. Then they will do the once a year treatment. All I know is the doctor said she is very complicated, and there are numerous vessels opeining up, or they are not large enough yet to treat. I know this is taking a toll on us financially, we have to travel 3 ½ hours every time to go to the treatments, my husband takes off from work to be with us, and then I have to get a babysitter for my other two children ages 7 and 18 months while we are away.